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Very interesting discussion addressing the question of ‘What it means to be human’ what are the implications for the law if we separate the ideology of ‘self’ from relationship with the body.
H/t Bioedge
A recent feature in Nature opens with the following sentence: “In Alysson Muotri’s laboratory, hundreds of miniature human brains, the size of sesame seeds, float in Petri dishes, sparking with electrical activity.”
Dr Muotri, a Brazilian researcher working at the University of California, San Diego, is investigating what makes us uniquely human. The obvious answer is the brain, so he is studying it from an evolutionary and developmental perspective and differentiating stem cells to recreate "brain organoids" in his lab.
His research is quite innovative. For instance, he has compared the DNA of Neanderthals (taken from the fossil record and DNA samples from bones) with our DNA. This could give clues about why Neanderthal social, cultural and technological development was more limited and why they became extinct. This might lead to insights into mental health.
However, what his website blurb skates over is the difficult ethical questions arising from creating brain organoids. Nature points out that some scientists and ethicists argue that some experiments with organoids should not be allowed.
It appears that most researchers believe that it would be unethical to create organoids which have some degree of consciousness – disembodied brains floating in a petri dish. However, there’s very little agreement about what consciousness is. Philosophers have clashed over this for centuries; neuroscientists have been no more fortunate in reaching a conclusion. In the meantime, researchers like Muotri are forging ahead. He believes that he might need to create consciousness as part of his research.
In his view, brain organoid research offers no special difficulties. “We work with animal models that are conscious and there are no problems,” Muotri told Nature. “We need to move forward and if it turns out they become conscious, to be honest I don’t see it as a big deal.”
This horrified Wesley J. Smith, bioethics writer at National Review: “That crass attitude illustrates the huge peril biotech could pose to human decency. As the great moral philosopher Leon Kass once wrote, ‘shallow are the souls that have forgotten how to shudder.’”
h/t Bioedge
If anyone were unsure of where the Catholic Church stood on assisted suicide and euthanasia, they can have no doubts now. In a lengthy document titled Samaritanus Bonus (“the good Samaritan”), the Vatican has released a lengthy response to the spread of “assisted dying”.
Assisted suicide or euthanasia or both are permitted in the Netherlands, Belgium, Luxembourg, Canada, Colombia, Switzerland, eight states in the United States plus the District of Columbia, and two states in Australia. A number of other countries are considering legalisation.
The document is clear and emphatic: euthanasia is “an intrinsically evil act, in every situation or circumstance”.
As well, anyone who cooperates is guilty as well, even those who defend legalisation.
“Euthanasia is an act of homicide that no end can justify and that does not tolerate any form of complicity or active or passive collaboration. Those who approve laws of euthanasia and assisted suicide, therefore, become accomplices of a grave sin that others will execute. They are also guilty of scandal because by such laws they contribute to the distortion of conscience, even among the faithful.”
The Church’s opposition is hardly news. More than 50 years ago the Second Vatican Council condemned euthanasia. Long before the Netherlands legalised it in 2002, Pope John Paul II forbade it in an encyclical, Evangelium Vitae (“the Gospel of Life”). However, the disagreeable reality of legalisation presents problems for Catholics – and other Christians who oppose it in theory. Should people who request assisted suicide or euthanasia receive the Church’s last rites? Should they be given a Christian funeral?
Some bishops appeared to lean toward a policy of demonstrating compassion by “accompanying” a person who chooses to die in this way.
Samaritanus Bonus puts the kibosh on this. People who request assisted suicide or euthanasia may not receive the Church’s sacraments. Even membership in an association organising “assisted dying” is forbidden. They “must manifest the intention of cancelling such a registration before receiving the sacraments”.
Whilst this sounds harsh, the document acknowledges that in extremis people may be so distressed that they are not fully responsible for choosing this kind of death. It urges priests to look for “adequate signs of conversion”. But in principle, there should be no cooperation whatsoever:
Those who spiritually assist these persons should avoid any gesture, such as remaining until the euthanasia is performed, that could be interpreted as approval of this action. Such a presence could imply complicity in this act. This principle applies in a particular way, but is not limited to, chaplains in the healthcare systems where euthanasia is practiced, for they must not give scandal by behaving in a manner that makes them complicit in the termination of human life.
Familiar stuff, perhaps, for friends and foes of Catholicism.
What’s different about this document is that it also offers a perceptive bioethical analysis of euthanasia, along with theological prescriptions.
The principal justification for euthanasia is autonomy. It’s my life; I can do what I want with it. Nobody can tell me what to do. We have to respect a patient’s autonomous decision. Choosing the time and place of death is the ultimate affirmation of autonomy, etc. The arguments are nearly always drawn straight from the playbook of the 19th century British philosopher John Stuart Mill.
The philosophy underlying the secular arguments deployed in Samaritanus Bonus is completely different. Instead of departing from the autonomy of the patient, it emphasises the universal experience of vulnerability.
For the fully autonomous man, think of lron Man in the Marvel Universe. Zipping around in his suit of armour, he is invulnerable. But what makes him interesting is the fact that Tony Stark is vulnerable. He suffers from PTSD, narcissism and loneliness. It’s not the strength of Iron Man’s armour that makes him human, but the fragility of Tony Stark’s character.
Which is more or less what the Vatican says:
“The need for medical care is born in the vulnerability of the human condition in its finitude and limitations. Each person’s vulnerability is encoded in our nature as a unity of body and soul: we are materially and temporally finite, and yet we have a longing for the infinite and a destiny that is eternal. As creatures who are by nature finite, yet nonetheless destined for eternity, we depend on material goods and on the mutual support of other persons, and also on our original, deep connection with God.“
Given this vision of what a human being is, the appropriate response to illness is not to kill a patient, but to care for him.
“Our vulnerability forms the basis for an ethics of care, especially in the medical field, which is expressed in concern, dedication, shared participation and responsibility towards the women and men entrusted to us for material and spiritual assistance in their hour of need.“
Furthermore, the document points out that measuring a patient’s dignity by his autonomy leads to the contradiction which has always bedevilled Mill’s theory. How can the highest expression of autonomy be to extinguish it? If that were true, couldn’t we choose to sell ourselves into slavery to settle our debts? No. “Just as we cannot make another person our slave, even if they ask to be, so we cannot directly choose to take the life of another, even if they request it,” it points out.
“Therefore, to end the life of a sick person who requests euthanasia is by no means to acknowledge and respect their autonomy, but on the contrary to disavow the value of both their freedom, now under the sway of suffering and illness, and of their life by excluding any further possibility of human relationship, of sensing the meaning of their existence, or of growth in the theologal life. Moreover, it is to take the place of God in deciding the moment of death.“
The document also makes some very shrewd observations about the implications of pretending that we are Iron Man instead of acknowledging ruefully that underneath we are really Tony Stark.
In fact, if autonomy is the highest value, people whose autonomy is impaired are in trouble.
“Those who find themselves in a state of dependence and unable to realize a perfect autonomy and reciprocity, come to be cared for as a favor to them. The concept of the good is thus reduced to a social accord: each one receives the treatment and assistance that autonomy or social and economic utility make possible or expedient. As a result, interpersonal relationships are impoverished, becoming fragile in the absence of supernatural charity, and of that human solidarity and social support necessary to face the most difficult moments and decisions of life.”
In short, the proper response to Tony Stark’s end-of-life existential crisis is not to end his life, but to lavish care upon him, to treat him as unique and precious (which is what happens in Avengers: Endgame)
“Let’s get back to living...Let’s be smart about it. And those of us who are 70-plus, we’ll take care of ourselves, but don’t sacrifice the country.”
“It is possibly the dumbest debate we’re having...People are being incredibly simplistic and are not thinking through this beyond the next two weeks. The number of people who have emailed me and said, have you thought about the economic effects? You know, it turns out, I’ve thought about that!”
“Operationalizing the value of maximizing benefits means that people who are sick but could recover if treated are given priority over those who are unlikely to recover even if treated and those who are likely to recover without treatment. Because young, severely ill patients will often comprise many of those who are sick but could recover with treatment, this operationalization also has the effect of giving priority to those who are worst off in the sense of being at risk of dying young and not having a full life.”
“Because maximizing benefits is paramount in a pandemic, we believe that removing a patient from a ventilator or an ICU bed to provide it to others in need is also justifiable and that patients should be made aware of this possibility at admission”.
...many guidelines agree that the decision to withdraw a scarce resource to save others is not an act of killing and does not require the patient’s consent. We agree with these guidelines that it is the ethical thing to do.”
“...younger patients should not be prioritized for Covid-19 vaccines, which prevent disease rather than cure it, or for experimental post- or pre-exposure prophylaxis. Covid-19 outcomes have been significantly worse in older persons and those with chronic conditions. Invoking the value of maximizing saving lives justifies giving older persons priority for vaccines immediately after health care workers and first responders”.
“Even in a crisis, self-designated “experts” are trying to marginalize people with disabilities and seniors. Instead, let’s develop policies that “flatten the curve” and prepare to treat all those who may find themselves vulnerable to Covid-19”.
“We think it is clear that the suffering associated with mental illnesses can sometimes be as severe, intractable, and prolonged as the suffering due to physical illnesses. Accordingly, it seems to us that if severe suffering can justify [physician assisted dying] for some persons with terminal physical illnesses, it should justify [physician assisted dying] for some persons with mental illnesses, too. Call this the parity argument.”
“by forbidding [physician assisted death] in [cases of] mental illness we could [be denying] much-needed succor to a person who is suffering severely and whose request for death is reasonable and made with full capacity”.
“Kious and Battin are right to assert that there is no distinction of substance between physical and psychiatric suffering, and that the presence of psychiatric suffering does not necessarily connote incapacity (although in practice it often will)...[yet the authors] have reached precisely the wrong conclusion using, in part, precisely the right reasoning. The right conclusion is not that the ambit of legally sanctioned physician-assisted suicide (PAS) should be widened, but that it should be narrowed: Indeed, PAS should be unlawful”.
“We had hoped that the HFEA would have listened to the thousands of people who have expressed concern about three parent embryos. Instead it has ignored the alarm bells and approved a procedure which will alter the human genome. It is at the very least reckless and irresponsible given that we have absolutely no idea what the long term consequences are to us interfering with the human genome.
"Whilst we are deeply sympathetic to the plight of people with mitochondrial related diseases, the end does not always justify the means. Our understandable search for therapies to help overcome illness and disabilities must be done in an ethical way and balanced against the unconditional acceptance of all human beings, whatever differences they may have."
“[George and Tollefsen] deploy the concept of an ‘active disposition’… If an active disposition to develop into an adult human being is morally salient, then it makes sense to say that the one-celled embryo has moral status, whereas every individual cell of an adult human being in isolation lacks it.”Wikins also refutes the view that embryos are not sufficiently distinct from a mother’s uterus to be considered independent entities. Wilkins distinguishes causal independence from ontological independence, saying we don’t need the former to prove that the child is a distinct entity. “[all that the argument] requires is the much weaker claim that the embryo is ontologically independent of the mother.”
“our current concepts of person and personal identity include both bodily identity and psychological continuity…McMahon leaves this criterion [i.e. bodily identity] out of his account, not realizing that he has subtly dropped one of our current criteria for the identity and identification of persons”.Person in the way we use the word it is not just about psychological continuity, and so the transplant argument doesn't get off the ground.